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AACPDM 72nd Annual Meeting

Wednesday, October 10, 2018

7:30 am - 12:00 pm AACPDM Board & Committee Breakfast / Meetings
8:00 am - 5:00 pm Ultrasound Workshop
12:00 pm - 1:00 pm AACPDM Board & Committee Luncheon
1:00 pm - 5:00 pm Pre-Conference Sessions

PC1: Design and Conduct of Comparative Effectiveness Trials and Practice-Based Research in Cerebral Palsy

Stephanie DeLuca, PhD;  Sharon Ramey, PhD; Amy Darragh, OTR, PhD; Mark Conaway, PhD; Ralph Nitkin, PhD;

Target Audience: All members of the Academy interested in pain management

Course Summary: This Institute is intended to assist potential investigative teams in developing highly competitive, scientifically well-justified applications that utilize comparative effectiveness trial designs or practice-based research designs. Closely related topics are the need for more longitudinal and life course outcomes research and understanding combined or sequential delivery of treatments to individuals with CP. The presenters – from the disciplines of Developmental Pediatrics, Developmental Science, Occupational Therapy, Physical Therapy, and Biostatistics)  have had experience in developing innovative approaches to utilizing these design alternatives, as well as extensive experience in traditional RCTs. Additionally, an NIH Project Officer will provide perspectives on the NIH support for the Strategic Plan and how to obtain assistance in developing applications for submission. The overall goal is to further the mission of AACPDM through maximizing the number of high-quality applications submitted and funded. Additionally, this Institute will emphasize the value of incorporating the Common Data Elements (CDEs) now in place at NINDS for clinical research in CP (a jointly sponsored endeavor between NIH and AACPDM).

Learning Objectives:

Participants will have a working understanding and vocabulary of key terms and concepts for the following: the NIH Strategic Plan for CP research; Comparative Effectiveness Trials and Practice-based Research Studies; some of the key statistical issues that must be addressed; CDEs in CP research; and potential “next steps” for follow-up among individuals and/or teams participating in the Institute.

PC2: The Complex Genesis of Chronic Pain: The Summation of Many

Alexander Hoon, Jr., MD, MPH; Shenandoah Robinson, MD; Eric Levey, MD

Course Summary: While chronic pain is a well-recognized problem for individuals with cerebral palsy (CP), we know little about who is at risk and how to prevent/treat it. The previously held concept that the brain experiences tissue perturbation as pain has been replaced by a more complex biopsychosocial model where pain is  the summation of peripheral nociceptive stimuli, central processing and psychological and environmental factors. The transition from acute to chronic pain is believed to be secondary to maladaptive neurologic responses involving peripheral sensory input, central sensitization and descending modulation. We believe that chronic pain may result from abnormally-wired pain circuits disrupted by the same early insult(s) that lead to CP, with cumulative medical problems and/or inherent genetic vulnerability also playing an important role; and that early identification and treatment of pain offers the possibility to interrupt a deleterious cascade of events and prevent evolution into chronic pain.  In this course we will explore both peripheral and central components of pain processing and present our ongoing research objectives.

Learning Objectives:

  1. The peripheral and central components of pain perception
  2. The utility of biomarkers/advanced brain imaging in understanding the etiologic antecedents of pain
  3. The possibility that early intervention may prevent/minimize the development of chronic pain
  4. Approaches to pain management

PC3: Hammersmith Infant Neurological Examination Clinical Workshop

Rachel Byrne, BA of Physical Therapy, BA Exercise Science; Joanna Burton; Nathalie Maitre, MD, PhD; Mary Ann Nelin, MD; Betsy Ostrander

Target Audience: Physicians, nurse practitioners, therapists caring for infants 3-24 months with high-risk for neurological impairments

Course Summary: A published and effective clinical training workshop format will provide participants with the following:

  1. An introduction to the HINE within the context of other neurological examinations in infants
  2. A video demonstration of the basic elements of the HINE and what neurological system function they test
  3. A discussion of published optimality scores, cut-off scores that assist in various clinical situations
  4. Two practice, hands-on opportunities with volunteer infants and video scoring
  5. A video test to assess reliability of scoring
  6. A wrap-up to place this training within the continuum of practice to mastery and to give opportunities for further self-reflection

At the end of the Pre-Conference Session, participants will be able to:

  1. Discuss the uses and limitations of the HINE
  2. Utilize optimality scores and cut-off to aid in clinical practice
  3. Perform the elements of the HINE at a basic level of proficiency
  4. Score HINE elements with 90% reliability
1:00 pm - 5:00 pm Board of Directors Meeting
6:30 pm - 8:30 pm Welcome Reception at the Hall of Mirrors/Hilton Netherland Plaza

Important Dates

  • May 31st
    Registration Opens
  • July 23rd
    Exhibit Booth Application Deadline
  • August 29th
    Early Bird Registration Discount Ends
  • September 11th
    Hotel Room Block Reservation Deadline
  • September 12th
    Online Registration Deadline
  • September 19th
    Presentation Handout Deadline
  • October 9th-13th
    72nd Annual Meeting!