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Have You Heard

Last Updated:
March 15, 2017

It is Cerebral Palsy Awareness Month!

Please mark your calendars for March 25th - National Cerebral Palsy Awareness day!

2017 Resolution

To spread awareness, wear the color green to honor everyone touched by cerebral palsy (CP).

Raising awareness helps research organizations stay funded, as they typically rely on contributions from donors. Help spread the word and share Facebook posts! PLUS . . . There are many events taking place to engage awareness for CP. Please view the list of AACPDM partners and their current activities below:


CPF Challenge

CPF

 

TAKE THE CPF CHALLENGE!

Every hour another child is born with cerebral palsy. In just 7 minutes, you can change their lives. The CPF Challenge: 7 Minute Workout is designed to raise your pulse, raise awareness of CP, and raise dollars for the Cerebral Palsy Foundation's powerful transformative initiatives.

Starting March 25th, complete daily 7 minute workouts for 21 days using the CPF Challenge App.

APP STORE bit.ly/CPFChallenge
GOOGLE PLAY bit.ly/CPFChallenge_GooglePlay

WHAT SETS THE CPF CHALLENGE APART?


CP Now

CP NOW has been celebrating CP awareness month with a social media awareness campaign highlighting how people with CP have fun. We are using the hashtags: #peoplewithcphavefuntoo & #cpawareness2017.

In addition to this campaign, CP NOW has received an award from the Patient Centered Outcomes Research Institute (PCORI) to develop a patient centered research agenda for the CP community. This initiative is being conducted in partnership with the Cerebral Palsy Research Network (CPRN) and is entitled Research CP. It brings together parents, adults with CP, professionals and advocates to learn and collaborate together in prioritizing research topics for the CP community.

In the next few months, a Spanish translation of The CP Tool Kit--From Diagnosis to Understanding will be released expanding its reach to families and professionals, and we also will be publishing a guide to wellbeing for parents and caregivers in partnership with the University of Melbourne, Australia.


Cure CP

Cure CP has its 5th annual Night at the Derby on Friday, May 5th. This Derby themed party is a gala with dinner, band, live and silent auction. The money raised that night will go directly towards CP research. More details about the event can be found on our website. www.curecp.org


Reaching for the Stars

Blaze Sports America

Blazing New Trails™: Updates in the Care of Children with Cerebral Palsy

New Educational Program to Support Families of Children with Cerebral Palsy, Launched by "Reaching for the Stars. A Foundation of Hope for Children with Cerebral Palsy"

Program includes multiple Town Hall events with multi-disciplinary care teams and introduction of CPTV ‘videos on demand’ with additional website resources. Read more.

2017 Dues Renewal is Open

AACPDM members can now renew their dues for 2017! Please click here to renew online, or to print an invoice to mail in.

As an active member of AACPDM, you will continue receive the following:

 Thank you for your continued support!

Join an AACPDM Committee

The AACPDM is seeking volunteers for open committee positions.  Committee membership is a great way to contribute to the Academy, and it will also enhance your personal professional growth through connections with your colleagues. The committees that are seeking candidates are:

Please visit our volunteer application to indicate your interest in any of our committees.

Featured TedX Talk

We are pleased to make you aware of this TEDx talk by AACPDM Board of Directors member Dr. Lisa Thornton, titled "What I've Learned as a Childhood Disability Doctor."

Lisa Thornton, M.D. is a Pediatrician who specializes in the care of children with disabilities. She is passionate about providing reliable health information for families and believes that childhood is the best time to develop lifelong healthy habits for the body and mind.

Are children who have a physical disability as content and satisfied with their lives as children who don'€™t? Yes!  In this enlightening talk, Lisa Thornton, a physician who specializes in the medical care of children with disabilities, will share insights she has learned from the parents of her patients who raise happy, well-adjusted children.

Your shopping on Amazon can benefit AACPDM

AACPDM is part of Amazon.com's Smile program.  Amazon Smile allows us to receive a percentage of the money you spend on Amazon Smile, on any purchases that you make.

To set up AACPDM as your charity, please visit Amazon Smile.  Just under the search bar, there is a link to choose your charity.  Click on that and search for "AACPDM", then select us.  If you've bookmarked Amazon.com, please consider replacing that bookmark with this URL: http://smile.amazon.com, after choosing AACPDM as your donation selection.

Please remember - you'll have to access Amazon through the Amazon Smile page at http://smile.amazon.com.  If you go to Amazon.com, a percentage is not donated!

Featured TEDMED Talk

AACPDM is proud to feature TED talks that we think you should watch.  We are pleased to feature this talk by Cole Galloway, who has spoken at the AACPDM Annual Meeting in the past.  Dr. Galloway's talk is called "A Movement for Mobility" 

Neuroscientist and physical therapist James “Cole” Galloway thinks differently about the role of self-motivated mobility in shaping who we are in early life. As Director of the Pediatric Mobility Lab and Design Studio and Professor at the University of Delaware, he invents assistive devices for children with motor impairments. His approach of combining high tech and low tech—or “go tech”—to restore physical independence and its neurodevelopmental consequences for disabled children has garnered the interest of the National Institutes of Health, the National Science Foundation, and the toy industry.

Featured TEDx Talk

AACPDM is proud to feature TED talks that we think you should watch.  We are pleased to feature this talk by Stella Young, who recently passed away.  Ms. Young's talk is titled "I'm not your inspiration, thank you very much"  The description on TEDx reads "Stella Young is a comedian and journalist who happens to go about her day in a wheelchair — a fact that doesn't, she'd like to make clear, automatically turn her into a noble inspiration to all humanity. In this very funny talk, Young breaks down society's habit of turning disabled people into "inspiration porn.""

2014 Parent Panel

Check out the video from our 2014 Annual Meeting opening session featuring our wonderful parent panel speakers - Dana Florence, Cynthia Frisina, Jill Chambers and Carol Shrader.

DMCN goes mobile

Introducing the new iOS app for Developmental Medicine & Child Neurology

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