Committees

To encourage and provide leadership in developing interdisciplinary educational programs for the membership of the AACPDM on Lifespan care issues including transition to adulthood, aging, and adult outcomes.

To foster attitudinal changes so that preparation for transition can begin in infancy and early childhood, recognizing that there are transitions throughout development and the whole lifespan that require attention and preparation.

To promote recognition of the need for consumer input and dialogue in planning educational, clinical, and research programs.

To address the needs for formal study and research in adult outcomes of interventions for children with developmental disabilities.

To provide leadership in exploring and advocating for models of care and service provision which meet the medical, psychosocial, emotional, educational, vocational, and housing needs of adolescence and adults with developmental disabilities.

The following presentations about adults and/or adolescents related to life span care were featured at the 54th annual meeting of AACPDM in Toronto September 20-23, 2000. Most of these abstracts have been published in Supplement No. 83, Vol. 42, August 2000 issue of Developmental Medicine Child Neurology:

Pain in Children and Adults with CP: What Do We Know? What Do We Need to Know? Maureen E. O'Donnell, MD; Tim F. Oberlander, MD, FRCPC; Joyce M. Engel, PhD, OT

Psychosocial Prevention and Intervention Programs for Children and Adolescents with Spina Bifida and Other Developmental Disabilities Beth V. Simon, PsyD; Beatrice Sadighi, PsyD

Outcomes Measurement in Adolescents and Adults with Cerebral Palsy and Spina Bifida. Laura K. Vogtle, OT; Timothy J. Brei, MD

Diagnosis, Prevention and Treatment of Osteoporosis in Children and Adults with Cerebral Palsy. Nienke P. Dosa, MD; Gregory Liptak, MD, MPH; Cheryl Kline, RN, MS, CPNP

Enhancing the Vocational Development of Adolescents with Disabilities. Linda J. Michaud, MD; J. Erin Riehle, MSN; Susan Rutkowski, MEd

Health Risks of Adolescents with Physical Disabilities. Catherine Steele, PhD; Ilze Kalnins, PhD; Joseph Bortolussi, MSW; Jeffrey Jutai, PhD; Douglas Biggar, MD

Differences in Perception of Social Function Between Adolescents With and Without Disabilities. Laura K. Vogtle, PhD, OT; Donna Kern, MSOT; Amy McCauley, MSOT

Family Life Experiences: Transitions with Adolescents with a Diagnosis of Cerebral Palsy. Johanna M Darrah, PhD; Joyce Magill-Evans, PhD, OT; Kerrie Pain, PhD; Robin Adkins, PhD; Marianne Kratochvil, MSW; Vivienne Bartee

Gait Changes in Normal Adults Following an Imposed Biomechanical Constraint on the Trunk and Pelvis. Mary E Farrell, MPT; Theresa A. Foti, PhD; Jon R. Davids, MD; Roy B. Davis, PhD

Long-term Outcome of Pediatric Stroke Survivors. Edward A Hurvitz, MD; Seth A. Warschausky, MD; Michelle Berg, BS; Shane Tsai, BS

Comparison of Functional Independence Outcome Scores Between Adolescents and Adults. Vivian Shih, MD; Rachna Hajela, DO; Deborah Gaebler-Spira, MD

From Disability to Independence: A Transition Project for Youths. Norine Wong MSW, LSW; Patricia Heu; MD; Mark Obatake, MSW; Kent Reinker, MD

Links to Transitional Oriented Material

A nonprofit, tax exempt Minnesota statewide organization begun in 1977. PACER's mission is to improve and expand opportunities that enhance the quality of life for children and young adults with all disabilities - physical, mental, emotional, learning - and their families. PACER now offers 20 major programs, including Parent Training programs, programs for students and schools, and technical assistance to parent centers both regionally and nationally. Transition Assistance [www.pacer.org/tatra/tatra.htm] is a project that provides free information about training programs that teach people with disabilities how to use public transportation, and training programs that teach transit providers how to best serve their passengers with disabilities Employment Related Links is a portion of the PACER site

Shriner's Hospitals Transitional Projects and Resources [www.shrinershq.org/choices/index.html]

Works with children seen by one or more of the CHOICES partners Care coordination helps to make sure that care is coordinated and that your healthcare providers know what each other is doing Designated staff at Shriners Hospitals and state programs work together through care coordination

Employment Related Links (Technical Assistance Alliance) [www.taalliance.org/]

Services provided on these websites include how to write a resume, tips for interviewing, how to conduct a search for a job, types of jobs to search for and what skills you will need. Many also include a listing of position openings.

Healthy and Ready to Work (An MCHB/DSCSHN initiative since 1996) [www.mchbhrtw.org]

Promoting a comprehensive system of family centered, culturally competent, community-based care for children with special health care needs who are approaching adulthood and may need assistance in making the transition from pediatric to adult health care and to post-secondary education and/or employment.

This online community is dedicated to people with disabilities, featuring a searchable database of accessible homes, schedules for wheelchair sports competitions, and linking employees with diversity-oriented employers. The site plans to be accessible to technologies such as page readers, eyegaze, and text to speech.

Health, Wellness and Aging with disability
[http://www.usc.edu/dept/gero/RRTConAging/]

Rehabilitation Research & Training Center on Aging with a Disability This site is funded by the National Institute on Disability and Rehabilitation Research (NIDRR), a part of the U.S. Department of Education. It is a collaborative effort of Rancho Los Amigos Medical Center and the University of Southern California. Purposes are 1) to conduct research in this problem area, 2) to train others about findings in this area as well as how to conduct rehabilitation research, and 3) to disseminate information to consumers and professionals.

Rehabilitation Research and Training Center on Aging with Developmental [http://www.uic.edu/orgs/rrtcamr/]

This University of Illinois, Chicago website has a wide variety of resources for researchers, planners, providers, self-advocates, families and students.

Committee Members

Laura Vogtle Ph.D., OTR, Chairman
3520 Bermuda Drive
Birmingham, AL 35210
Phone: 205-934-7326
Email: lvogtle@uab.edu

Barb Ashton, PT
Robin Hood Association
141 Broadway Blvd.
Sherwood Park, AB T8H-2A4
Canada

Timothy J. Brei MD
Riley Hospital for Children
702 Barnhill Drive Rm. 1601
Indianapolis, IN 46202
Email: tbrei@iupui.edu

Rhoda Erhardt, OTR
2379 Snowshoe Court
Maplewood, MN 55119
Phone: 651-730-9004
Email: rperhardtdp@att.net

Janet Lord, MD
AltaBates-Herrick Rehab Centre
2001 Dwight Way, Rm 2350
Berkeley, CA 94704
Email: janl@nothingbutnet.com

Kevin P. Murphy, MD
Gillette Childrens' Specialty Healthcare North Clinics
1420 London Road, Suite 210
Duluth, MN 55805
Email: Kmurphy@Gillettechildrens.com

Ann Reiner, MS
#2-6360 Lynas Lane
Richmond, BC V7C 5C9
Canada
Email: reiner@intergate.bc.ca

J. Erin Riehle, MSN
Children's Hospital Medical Center
3333 Burnet Ave.
Cincinnati, OH 45229
Email: riehe0@chmcc.org

Susan Rutkowski
Great Oaks Institute of Technology
3254 Kemper Rd.
Cincinnati, OH 45241
Email: rutkowss@greatoaks.com

Kerstin Sobus, MD
Altru Health System
1300 S. Columbia Rd.
Grand Forks, ND 58206
Email: ksobus@altru.org